Tripp Roth tinha a idade da Diana e foi diagnosticado ao nascer com Epidermólise Bolhosa Juncional. Morreu este sábado nos braços da mãe. Desde a morte da Bella que não tenho seguido nenhum blogue de doentes com EB mas Courtney Roth tem um dos mais famosos, o EBing a Mommy. A morte de um filho é um fantasma que nos assusta a todos e especialmente aos pais de crianças borboleta, pois em muitos casos torna-se realidade. Nestas alturas nunca sabemos bem o que dizer, o que sentir. Ainda que pensemos que o Tripp está num lugar melhor, sem dores, o nosso coração fica um pouco mais pequeno, mais apertado.
"These are my footprints,
so perfect and so small.
These tiny footprints
never touched the ground at all.
Not one tiny footprint,
for now I have wings.
These tiny footprints were meant
for other things.
You will hear my tiny footprints,
in the patter of the rain.
Gentle drops like angel's tears,
of joy and not from pain.
You will see my tiny footprints,
in each butterflies' lazy dance.
I'll let you know I'm with you,
if you just give me the chance.
You will see my tiny footprints,
in the rustle of the leaves.
I will whisper names into the wind,
and call each one that grieves.
Most of all, these tiny footprints,
are found on Mommy's heart.
'Cause even though I'm gone now,
We'll never truly part."
~Unknown
so perfect and so small.
These tiny footprints
never touched the ground at all.
Not one tiny footprint,
for now I have wings.
These tiny footprints were meant
for other things.
You will hear my tiny footprints,
in the patter of the rain.
Gentle drops like angel's tears,
of joy and not from pain.
You will see my tiny footprints,
in each butterflies' lazy dance.
I'll let you know I'm with you,
if you just give me the chance.
You will see my tiny footprints,
in the rustle of the leaves.
I will whisper names into the wind,
and call each one that grieves.
Most of all, these tiny footprints,
are found on Mommy's heart.
'Cause even though I'm gone now,
We'll never truly part."
~Unknown
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